Table of Contents


1. What do we mean by “long term care?”

2. Overview of long term care services in Indiana

3. Assessing your loved one's needs

4. Finding Services

5. The Costs of Long Term Care and Paying for Services

6. Getting Good Care

7. Home Care: Information & Resources
A. Home Health Care
B. Personal Attendant Services

8. Adult Day Services: Information & Resources

9. Assisted Living: Information & Resources

10. Nursing Homes: Information & Resources

11. Hospice Care

12. Addressing Problems

13. Resources

14. Advocacy





Rosalyn Carter said it best: “There are only four kinds of people in the world – those who have been caregivers, those who are currently caregivers, those who will be caregivers and those who will need caregivers”.


This CD is designed to provide resources for family caregivers with a loved one who needs ongoing care and assistance in Indiana.


Caregiving can be an overwhelming and difficult task. It’s not easy to determine what help your loved one needs, find those services, figure out how to pay for them and then monitor to see that quality care is given. To help you on your caregiving journey, we have filled this CD with information to educate, guide and empower you. You will find resources here that cover the continuum of long term care—from keeping your loved one at home to care in a nursing home and hospice care.


Veteran's Resources are are now included in Chapter 13. In 2010 President Obama signed the Caregivers & Veterans Omnibus Health Services Act of 2010 which will offer more opportunities for veteran's to receive home and community-based care and for their caregivers to receive support.


Although we have prepared this CD with you, the family caregiver, in mind, each and every one of these resources can be easily adapted and used by care receivers too. In fact, we urge you to involve your loved one as much as possible in discussions and decisions about his or her own care, while you focus on doing the best you can to support and advocate for his or her wishes.


And if the going gets tough, remember there are many places you can turn for support, and caregiving is all about just doing the best you can.

A Few Notes to those who view information on this CD

This CD can be used in a number of different ways. Some people may want to focus in on the information they need right now, while others will prefer to read through all the material in order to start planning for care in the future. There is no right or wrong way to use this resource.

The CD is designed to be run on a computer that is connected to the Internet. If you are not connected to the Internet, this CD will still function, but none of the outside links for resources will be accessible.

You will find many useful links and resources on this CD. Text that is blue indicates a link to a helpful resource. To access the resource, just click once on the blue text.

To read all of the resource documentation provided on this CD, you must have a copy of Acrobat Reader installed on your computer. Acrobat Reader is available as a free download here.

The information contained on this CD is not intended to be legal, medical, or financial advice, but is to be used for informational purposes only. Always check with licensed professionals about legal, medical or financial issues.


In order to improve our on-line and future CD versions of the consumer digest, we would like you to complete a short evaluation form of the Caregiver Digest 2012. You can print out the form, fill it out and send it to us, copy it to the body of an e-mail message and fill out, or send it to us as an attachment: Evaluation form in MS Word


Finally, the material and links to web sites on this Caregiver Digest are current as of January 2012. We are not responsible for changes made by other organizations on their web sites. The entire Caregiver Digest 2012 is posted on the United Senior Action website and will be updated there on a continual basis. If there is demand, we will publish updated versions of the Caregiver Digest on CD in the future.


This Indiana Long Term Care Resouce is made possible through the generosity of

CICOA Aging & In-Home Services and

the Nina Mason Pulliam Charitable Trust.

>>>Click here for Chapter 1: What do we mean by “long term care?
About Us | Contact Us | Acknowledgments | Evaluation | ©2012 United Senior Action